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-- scleroderma america’s leading nonprofit investor in medical research to find better treatments and a cure for scleroderma. join our mailing list options home research funded research fellowship program research news more research news scientific advisory board grant guidelines and applications post-doctoral fellowship guidelines research application guidelines featured research about us history board of directors scientific advisory board annual report srf in the news employment opportunities corporate partners get involved ways to give planned giving cure crew program cure crew srf support cure crew event info cure crew members lost password cure crew events cure crew sign-up cool comedy – hot cuisine srf store planned giving scleroderma legislation join our mailing list hero wall community stories volunteer about cure crew cure crew srf support cure crew event info cure crew members cure crew events cure crew sign-up for patients news for patients more patient news what is scleroderma frequently asked questions risk factors tips for living clinical trials current treatments treatment news archived treatment news treatment centers additional resources webinars for physicians current treatments treatment centers news for physicians contact us donate more... more... more... « 01 luke evnin 02 nycchc17 03 about us » pause frontpage slideshow (version 2.0.0) - copyright © 2006-2008 by joomlaworks donate now make a gift to make a difference the (srf) is the nation's leading nonprofit investor in medical research to find improved therapies and a cure for scleroderma. our progress is entirely dependent upon charitable gifts from generous people like you. donate online now other ways to give from donating to volunteering, there are many ways to support the srf and something everyone can do to help in the fight against scleroderma. learn more building your philanthropic legacy including the in your estate planning guarantees your lifetime commitment to finding a cure will continue. learn more the srf: a four star charity the srf has achieved the highest possible rating from charity navigator, america's premier charity evaluator, for sound fiscal management and commitment to accountability and transparency. we are honored to be included in this short list of america's most respected nonprofit organizations. downloads srf 2017 30th anniversary annual report: the foundation's 30th anniversary commemorative annual report is available for download. in this year's report you will learn about the srf’s 2018 launch of the first national longitudinal patient registry, conquer. you will get an update on the collaborative grasp effort that has brought together 23 centers across the u.s. and its continued exploration of scleroderma-specific disease mechanisms. as well you can browse our expanding portfolio of projects, and learn about what makes our research program the most powerful in the country.. click to view board profile: srf board member saville kellner shares his "aha moment" about how to appreciate life. click to watch video project scleroderma: a six-minute video featuring patient and caregiver stories, highlighting the role of medical research for longer, fuller lives. click to watch video events cool comedy-hot cuisine new york thank you to all who came out to honor violetta and andrew merin and celebrate 30 years of cchc and the srf, together we raised more than $1.2 million to fund life-saving scleroderma research. the amazing event featured appearances by gilbert gottfried, george lopez, john oliver and special musical guest adam duritz. to support the event please click here! we invite you to take a look at the srf's 30th anniversary video. narrated by srf board member, susan feniger, the video commemorates our three decade long commitment to a cure. click here to view. other current events: the srf offers a variety of ways to support our research program. click here to learn more about how you can get involved: host a fundraising event quick links what is scleroderma? about the srf make a donation living with scleroderma frequently asked questions webinar series follow us on twitter like us on facebook featured news srf-funded harvard researchers explore cellular self-destruction as scleroderma treatment january-2018 organ fibrosis in scleroderma patients might be reversed with treatments that allow fibrotic cells to self-destruct, harvard scientists suggest. their study, “targeted apoptosis of myofibroblasts with the bh3 mimetic abt-263 reverses established fibrosis,” appeared in the journal science translational medicine. it demonstrated that the survival–self-destruction balance of fibrosis-producing myofibroblast cells can be tipped by using a compound now being explored as a cancer treatment. putting the pieces in place: deann wright december-2017 in the complicated world of scientific research deann wright encounters each day, only one thing is simple. the description of her role: puzzle solver. twenty years ago when her husband was diagnosed with scleroderma, deann wright said she had never even heard of the disease. today, as one of the key people at the srf working to identify great clinicians, researchers and research projects to present to the srf’s scientific advisory board, she is putting many of those pieces into place. grasp december-2017 dr. dan kastner and dr. fred wigley chuckled as they sat down for dinner together at the srf workshop. both were interested in meeting the many new scientists present that evening, but as the last people to join the table, the two old friends were seated together. they had known each other for years, but they did not often have a chance to sit and just talk. and, after listening to scientific presentations all day, they had plenty to discuss. as it happened, it was a fortuitous moment: they conceived the genome research in african american scleroderma patients (grasp) project over dinner that night." more hope than ever before: dr. luke evnin december-2017 today evnin says he has more hope and optimism than at any point since he found and joined the organization. and no one understands the research process and progress quite like evnin, who tracks the studies with vital interest – he has been living with scleroderma for more than 20 years. “today we’re running the most powerful scleroderma research program in the country, and we’re very proud of that," he said. “but we’re not on some ivory tower, academic mission to figure out what’s going on with scleroderma. we are trying to get to the cure today and, in the meantime, we are trying to help patients who are struggling with the disease." biomarkers predict digital vascular events in scleroderma july-2017 the likelihood of digital vascular pits, ulcers, or gangrene is increased in patients with scleroderma who are double-positive for anti-interferon-inducible protein 16 and anticentromere autoantibodies. particularly high anti-interferon-inducible protein 16 levels were found in patients with scleroderma who had active ischemic ulcers or gangrene. systemic sclerosis linked with altered gut microbiome july-2017 the numbers of bacteroidetes bacteria in the gi tracts of 2 separate cohorts of patients with systemic sclerosis were significantly reduced when compared with healthy controls. american patients with systemic sclerosis had more extensive alterations in their intestinal microbiota than those in a norwegian cohort. more than systemic sclerosis - the inside story june-2017 more than systemic sclerosis: the inside story’ is a collection of portraits showcasing the unique and inspiring stories of people living with systemic sclerosis, also known as scleroderma. launched to coincide with world scleroderma day 2017 (29 june), this global initiative highlights the importance of understanding the ‘inside story’ of each individual living with systemic sclerosis. eular update targets organ involvement in systemic sclerosis may-2017 in a systematic review

URL analysis for srfcure.org

http://www.srfcure.org/modules/mod_videoplayer/assets/player.php?video=/images/stories/video/projectscleroderma-6min.mp4
http://www.srfcure.org/research/fellowship-program
http://www.srfcure.org/research/funded-research
http://www.srfcure.org/for-physicians/current-treatments
http://www.srfcure.org/for-patients/risk-factors
http://www.srfcure.org/home
http://www.srfcure.org/about-us/1344-about-us-overview
http://www.srfcure.org/get-involved/community-stories
http://www.srfcure.org/get-involved/ways-to-give
http://www.srfcure.org/for-patients/additionalresources
http://www.srfcure.org/about-us/sab
http://www.srfcure.org/get-involved/cure-crew-program/cure-crew-events
http://www.srfcure.org/research/research-news/more-research-news?view=frontendfilters
http://www.srfcure.org/research/research-fellowship-grants/post-doctoral-fellowship-guidelines
http://www.srfcure.org/component/content/article/292-community-stories/4045-grasp

Whois Information

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Domain Name: SRFCURE.ORG
Registry Domain ID: D2897971-LROR
Registrar WHOIS Server: whois.networksolutions.com
Registrar URL: http://www.networksolutions.com
Updated Date: 2018-02-12T17:13:13Z
Creation Date: 1996-10-14T04:00:00Z
Registry Expiry Date: 2019-10-13T04:00:00Z
Registrar Registration Expiration Date:
Registrar: Network Solutions, LLC
Registrar IANA ID: 2
Registrar Abuse Contact Email: [email protected]
Registrar Abuse Contact Phone: +1.8003337680
Reseller:
Domain Status: clientTransferProhibited https://icann.org/epp#clientTransferProhibited
Registrant Organization: Scleroderma Research Foundation
Registrant State/Province: CA
Registrant Country: US
Name Server: NS45.WORLDNIC.COM
Name Server: NS46.WORLDNIC.COM
DNSSEC: unsigned
URL of the ICANN Whois Inaccuracy Complaint Form: https://www.icann.org/wicf/
>>> Last update of WHOIS database: 2018-06-24T04:47:26Z <<<

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  REFERRER http://www.pir.org/

  REGISTRAR Public Interest Registry

SERVERS

  SERVER org.whois-servers.net

  ARGS srfcure.org

  PORT 43

  TYPE domain

DOMAIN

  NAME srfcure.org

  HANDLE D2897971-LROR

  CREATED 1996-10-14

STATUS
clientTransferProhibited https://icann.org/epp#clientTransferProhibited

NSERVER

  NS45.WORLDNIC.COM 207.204.40.123

  NS46.WORLDNIC.COM 207.204.21.123

OWNER

  ORGANIZATION Scleroderma Research Foundation

ADDRESS

  STATE CA

  COUNTRY US

  REGISTERED yes

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